Williams Syndrome WisdomCard™
Our Guides and Physician Review team have organized the Top 10 Health Resources on Williams Syndrome and compiled helpful research notes below.
- A.D.A.M. (via MedlinePlus): Williams Syndrome nlm.nih.gov - Williams Syndrome
- Williams Syndrome Association: Parents Roadmap to Williams syndrome
williams-syndrome.org - Parents Roadmap to Williams syndrome
- Gene Reviews: Williams Syndrome geneclinics.org - Williams Syndrome
- Genetics Home Reference: Williams Syndrome ghr.nlm.nih.gov - Williams Syndrome
- Wrong Diagnosis: Williams Syndrome wrongdiagnosis.com - Williams Syndrome
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Research Notes on Williams Syndrome
Williams syndrome is a rare genetic disorder, which results in cognitive and developmental problems. A particular cardiovascular disease called supravalvular aortic stenosis is often seen in Williams syndrome, causing narrowing of the arteries. It appears to be due to a missing gene which produces elastin, a protein that permits the tissues in the body as well as the blood vessels to stretch.
Fast Facts:
- Williams syndrome occurs in less than 1 of 20,000 births.
- Some symptoms of Williams syndrome are cognitive defects like trouble with space and numbers.
- People with Williams syndrome often have gregarious personalities, and are often referred to as having "cocktail-party syndrome."
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What is Williams Syndrome?
- National Institute of Neurological Disorders and Stroke (NINDS): What is Williams Syndrome?
- Center for Interdisciplinary Brain Sciences Research: Williams Syndrome
- Wikipedia: Williams Syndrome
- Genes and Disease: Williams Syndrome
- University of Utah: Williams Syndrome
- Center for the Study of Autism: Williams Syndrome
What Are The Symptoms of Williams Syndrome?
- Williams Syndrome Association: What is Williams Syndrome and What are the Common Features of Williams Syndrome?
- National Association of Rare Disorders: Williams Syndrome
- A.D.A.M. (via MedlinePlus): Williams Syndrome Symptoms
- About.com: Rare Diseases: Williams Syndrome
- MedicineNet: When Words Don't Fail
What Are The Causes and Complications of Williams Syndrome?
- A.D.A.M. (via MedlinePlus): Williams Syndrome Causes
- Genetics Home Reference: What are the Genetic Changes Related to Williams Syndrome?
- Williams Syndrome Association: What is the Cause of Williams Syndrome?
- MedlinePlus: Williams Syndrome Possible Complications
- Wrong Diagnosis: Complications of Williams Syndrome
What Are The Treatments and Medications for Williams Syndrome?
- NINDS: Williams Syndrome: Is There Any Treatment?
- A.D.A.M. (via MedlinePlus): Williams Syndrome Treatment
- Williams Syndrome Association: Therapeutic Interventions | Doctors Resources For Williams Syndrome
- Wrong Diagnosis: Treatments for Williams Syndrome
What Are The Types, Stages and Survival Rates of Williams Syndrome?
- NINDS: Williams Syndrome: What is the Prognosis?
- A.D.A.M. (via MedlinePlus): Williams Syndrome Outlook (Prognosis)
- Wrong Diagnosis: Prognosis of Williams Syndrome
- Healthline: Williams Syndrome
Wisdom, Personal Experiences and Blogs about Williams Syndrome
- Canadian Association for Williams Syndrome: Bulletin Board
- National Public Radio: Williams Syndrome: It's Not a Fairy Tale
- BlogSpot: Ava Jewel Leilani Also Known as OYA (A True Warrior)
- BlogSpot: Clare's Journey
- New York Times: The Gregarious Brain
- Robert Finn: Different Minds
- Jaime King: Williams Syndrome
Foundations and Support Groups on Williams Syndrome
- Williams Syndrome Association: Your Source for the Latest Information on Williams Syndrome
- National Institutes of Health: National Institute of Neurological Disorders and Stroke
- Williams Syndrome Foundation: The Williams Syndrome Comprehensive Web Site
- Canadian Association for Williams Syndrome: Educational Resource
- Williams Syndrome Foundation UK: Educational Resource
Message Boards, Chat and Discussions about Williams Syndrome
- Williams Syndrome Association: Williams Syndrome Listserve
- Daily Strength: Williams Syndrome Support Community
- Yahoo Groups: Williamssyndrome Support Group
- A Place of Our Own: Williams Syndrome Message Board
- Google Groups: Williams Syndrome Group
Scientific and Medical Journal Articles on Williams Syndrome
- eMedicine: Williams Syndrome
- Online Mendelian Inheritance in Man: Williams-Beuren Syndrome
- Salk Institute: Beyond Nature vs. Nurture: Williams Syndrome Across Cultures (2007)
- Science Daily: Williams Syndrome, The Brain And Music
- Annals of the New York Acedemy of Sciences: Musical Behavior in a Neurogenetic Developmental Disorder: Evidence from Williams Syndrome
- PubMed: Williams Syndrome Articles
- Center for Interdisciplinary Brain Sciences Research: Williams Syndrome: Publications
- Google Scholar: Williams Syndrome Articles
Clinical Trials on Williams Syndrome
- ClinicalTrials.gov: Williams Syndrome Trials
- CenterWatch: Williams Syndrome Trials
- Center for Interdisciplinary Brain Sciences Research: Williams Syndrome: Participating
About this WisdomCard
- Contributor: Nicole Kinsey
- Reviewer: Pat Washburn
- Supervised by: The OrganizedWisdom Physician Review Team
- Last update: Oct. 16, 2009
Each WisdomCard is handcrafted by our team of physician-guided health advocates. Our goal is to make it easy for you to find the most useful health resources for any health topic. In addition to filtering out spam and bad links, WisdomCards highlight tips and warnings, such as:
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About WisdomCard
Meet our contributors and reviewers
- Contributor: Nicole Kinsey
- Reviewer: Pat Washburn
- Supervised by: The OrganizedWisdom Physician Review Team
- Redirects: William Syndrome, Williams Sindrome, Wiliams Syndrome, William Sindrome, Williams Syndrom, Williams-Beuren Syndrome, Williams Beuren syndrome, Cocktail-party syndrome, Elfin Facies Syndrome
- Last update: Oct. 16, 2008
Each WisdomCard is handcrafted by our team of physician-guided health advocates. Our goal is to make it easy for you to find the most useful health resources for any health topic by filtering out spam and bad links.
