Research Notes on Pfeiffer Syndrome
Pfeiffer syndrome is a genetic disorder characterized by the premature fusion of the sutures of the skull and deformity of the skull, preventing the skull from growing normally, which affects the normal growth of the face and head. Pfeiffer syndrome also affects the growth in the hands and feet.
Fast Facts:
- Pfeiffer syndrome affects about 1 in 100,000 individuals.
- More than half of all children with Pfeiffer syndrome have hearing loss and dental problems.
- Types 2 and 3 are more severe forms of Pfeiffer syndrome.
- The singer Prince had a son with Pfeiffer syndrome type 2, who died shortly after birth.
5 Great Resources on Pfeiffer Syndrome
- The National Craniofacial Association: Pfeiffer Syndrome
- Wikipedia: Pfeiffer Syndrome
- Healthwise (via WebMD): Pfeiffer Syndrome Type I
- WrongDiagnosis: Pfeiffer Syndrome
- Gale Encyclopedia of Genetic Disorders (via Healthline): Pfeiffer Syndrome
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3 Latest Headlines on Pfeiffer Syndrome
What is Pfeiffer Syndrome?
- Genetics Home Reference: What is Pfeiffer Syndrome?
- eNotes: Description of Pfeiffer Syndrome
- MedTerms (via MedicineNet): Definition of Pfeiffer Syndrome
- Children's Hospital Boston: What is Pfeiffer Syndrome?
- Oxford-Craniofacial.org: Pfeiffer Syndrome (Headlines factsheet)
What Are The Symptoms of Pfeiffer Syndrome?
- WrongDiagnosis: Symptoms of Pfeiffer Syndrome
- Gale Encyclopedia of Genetic Disorders (via Healthline): Signs and Symptoms of Pfeiffer Syndrome
- Skull Base Institute: Symptoms of Pfeiffer Syndrome
What Are The Causes and Complications of Pfeiffer Syndrome?
- International CranioFacial Institute: Causes of Pfeiffer Syndrome
- WrongDiagnosis: Complications of Pfeiffer Syndrome Type 3
What Are The Treatments and Medications for Pfeiffer Syndrome?
- Collaboration for CranioFacial Development and Disorders (CCDD): Treatment for Pfeiffer Sydrome
- International CranioFacial Institute: Expectations and Treatment of Pfeiffer Syndrome
- WrongDiagnosis: Treatments for Pfeiffer Syndrome
- Gale Encyclopedia of Genetic Disorders (via Healthline): Treatment and Management of Pfeiffer Syndrome
What Are The Types, Diagnosis and Survival Rates of Pfeiffer Syndrome?
- Wikipedia: Classification of Pfeiffer Syndrome
- CCDD: Diagnosis of Pfeiffer Syndrome
- Skull Base Institute: Prognosis of Pfeiffer Syndrome
Wisdom, Blogs, and Message Boards about Pfeiffer Syndrome
- Healthwise (via AOL Body): General Discussion for Pfeiffer Syndrome Type I
- DailyMail: The Changing Face of a Little Hero
- PakMediNet: Distraction Osteogenesis of the Maxilla Discussion Forum
- MakingContact.org: Pfeiffer Syndrome Message Board
Foundations and Support Groups on Pfeiffer Syndrome
- Geneva Foundation for Medical Education and Research: Pfeiffer Syndrome
- International CranioFacial Insitiute: Pfeiffer Syndrome
- The CranioFacial Center: Pfeiffer Sydrome
- CCDD: Pfeiffer Syndrome
- Skull Base Insitiute: Pfeiffer Sydrome
- Children's Craniofacial Association: A Guide to Understand Pfeiffer Syndrome
- National Organization for Rare Disorders: Pfeiffer Syndrome Type I
- World CranioFacial Foundation: World CranioFacial Foundation Homepage
- FACES: The National CranioFacial Association
- University of Michigan: Lets Face It: To Support a Person With Facial Difference
- National Foundation for Facial Reconstruction
- Operation Smile: Changing Lives One Smile at a Time
- Health Research Institute and Pfeiffer Treatment Center: Pfeiffer Treatment Center
Scientific and Medical Journal Articles on Pfeiffer Syndrome
- PubMed Central: Medical Journal Articles on Pfeiffer Syndrome
- Google Scholar: Medical Articles on Pfeiffer Syndrome
Clinical Trials on Pfeiffer Syndrome
- ClinicalTrials.gov: Clinical Trials on Pfeiffer Syndrome
User Recommended Links for Pfeiffer Syndrome
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About this WisdomCard
- Contributor: Kathy
- Reviewer: Nicole Kinsey
- Supervised by: The OrganizedWisdom Physician Review Team
- Last update: Oct. 2, 2008
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