Research Notes on Arteriohepatic Dysplasia
Arteriohepatic dysplasia, also called Alagille syndrome, is a genetic liver disorder that manifests early in life. Many children with this condition have a distinctive facial structure, including a prominent, broad forehead, deep-set, widely spaced eyes, low-set ears, a long, straight nose and a small pointed chin. One-third to one-half of children will develop cirrhosis before the disease stabilizes in the grade-school years.
5 Great Resources on Arteriohepatic Dysplasia
- LiverFacts.com: Arteriohepatic Dysplasia: Causes, Symptoms, Treatment
- Cincinnati Children's Hospital: Alagille Syndrome Explained
- HealthScout: Definition of Arteriohepatic Dysplasia
- Children's Liver Association for Support Services: Alagille Syndrome
- Cholestatic Liver Disease Consortium: Alagille Symptoms
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What is Arteriohepatic Dysplasia?
- MedicineNet: Definition of Arteriohepatic Dysplasia
- eMedicine: Alagille Syndrome
- HealthScout: Description of Arteriohepatic Dysplasia
What Are The Symptoms of Arteriohepatic Dysplasia?
- HealthScout: Symptoms of Arteriohepatic Dysplasia
- eMedicine: Alagille Syndrome
- Cholestatic Liver Disease Consortium: Symptoms
- Liver Facts: Questions to Ask Your Doctor
- Cincinnati Children's Hospital: Prognosis
What Are The Causes and Complications of Arteriohepatic Dysplasia?
- HealthCentral: Causes of Arteriohepatic Dysplasia
- U.S. National Library of Medicine: Hereditary Factors
What Are The Treatments and Medications for Arteriohepatic Dysplasia?
- eMedicine: Alagille Syndrome
- Wikipedia: Treatment, Medication, Surgery
Wisdom, Personal Experiences and Blogs about Arteriohepatic Dysplasia
- CaringBridge.org: Ethan's Story
- CaringBridge.org: Jordan's Story
- Children's Liver Association for Support Services: Emmalee's Story
Foundations and Support Groups on Arteriohepatic Dysplasia
- Alagille Syndrome Alliance: Bulletin Boards and Chatroom
- Children's Liver Association for Support Services: Treatment and Complications
- Liver Families: Online Support Group for Families Dealing with Pediatric Liver Disease
- American Liver Foundation: Resources
- Children's Liver Disease Foundation: Family Support Services
- National Institutes of Health Office of Rare Diseases: Genetic and Rare Disease Information
Message Boards, Chat and Discussions about Arteriohepatic Dysplasia
- Emory University and University of Alabama at Birmingham: Ask the Geneticist
- HealthBoards: Liver Disorders Message Board
Scientific and Medical Journal Articles on Arteriohepatic Dysplasia
- Pediatrics in Review: What’s New in Pediatric Organ Transplantation
- PubMed Central: Molecular Analysis of 24 Alagille Syndrome Families Identifies a Single Submicroscopic Deletion and Further Localizes the Alagille Region
- PubMed: Alagille Syndrome Today
Clinical Trials on Arteriohepatic Dysplasia
- U.S. National Institutes of Health: Completed Studies
User Recommended Links for Arteriohepatic Dysplasia
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About this WisdomCard
- Contributor: AngelaZ
- Reviewer: Pat Washburn
- Supervised by: The OrganizedWisdom Physician Review Team
- Last update: Jul. 30, 2008
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